PPPD Support · Ontario
Persistent Postural-Perceptual Dizziness.
You are not imagining this.
You are not making this up. You are not exaggerating. And you are definitely not the only one. If you have been told "all your tests came back normal" while the dizziness continues to shape your day, this page is for you.
Understanding the Condition
What PPPD actually is, in plain language.
PPPD is real, researched, and recognised in the ICD-11 (the World Health Organisation’s International Classification of Diseases). It is not "just anxiety," and it is not a made-up label for symptoms no one could be bothered to explain. Here are the essentials, grouped the way they tend to come up in session.
01 / Definition Symptoms that last three months or more, and don’t follow the usual rules.
PPPD (Persistent Postural-Perceptual Dizziness) is a chronic vestibular condition characterised by dizziness, unsteadiness, or a non-spinning sensation of swaying or rocking. To meet the diagnostic criteria, symptoms are present on most days for three months or more.
Symptoms tend to worsen with upright posture, active or passive motion, and exposure to complex visual environments: grocery store aisles, scrolling on a phone, traffic, crowds, patterned floors, fluorescent lighting. Symptoms often ease when you lie down, and rarely disappear for long.
02 / Triggers The event that started it usually heals. The brain’s response sometimes doesn’t.
PPPD almost always follows something that disrupted the balance system, even briefly. Common precipitants include BPPV, vestibular neuritis, a concussion, a bout of labyrinthitis, a severe panic attack, or a significant medical illness.
The original event usually resolves on its own or responds to treatment. What remains is a set of adaptations the nervous system made during the acute phase, which were helpful at the time and have now overstayed their welcome. The trigger heals. The pattern persists.
03 / Diagnosis Normal test results are part of the picture, not a reason to dismiss you.
PPPD is a clinical diagnosis. Vestibular function tests, MRIs, and bloodwork typically come back without abnormalities, which is frustrating and also expected. The Bárány Society established the criteria in 2017, and the condition is listed in the ICD-11.
The absence of findings on testing is not evidence that nothing is wrong. It is consistent with the nature of PPPD, which lives in how the brain processes signals from an otherwise functional balance system, not in the hardware itself.
04 / Mechanism The nervous system gets stuck in high-alert, and the brain starts leaning too hard on vision.
Three processes tend to work together in PPPD, each one feeding the next. Threat-detection circuits stay elevated, so the nervous system treats normal postural shifts as potential danger. The brain over-weights visual input as it tries to stabilise balance, which is why busy visual scenes feel overwhelming. Attention gets locked onto internal sensation, which makes every small sway feel loud.
The loop is maintained by the exact things that feel like common sense: hyper-vigilance about movement, avoidance of triggering environments, and the understandable habit of scanning the body for symptoms. Each of these are targetable in therapy.
05 / Outlook PPPD is treatable. Proper care changes the trajectory.
Recovery from PPPD is real, and the evidence base supports a multi-modal approach: vestibular rehabilitation to gently retrain the balance system, CBT to address the thought and attention patterns that maintain the loop, and, in some cases, medication prescribed by a physician (SSRIs and SNRIs have the strongest evidence).
Outcomes are meaningfully better when the condition is named early and addressed from multiple angles. Not every day becomes symptom-free, but the relationship with symptoms changes, and the ground under your feet starts to feel like ground again.
How Balens Psychotherapy Helps
Therapy that understands the loop, and works with it.
PPPD is not a condition to push through, and it is not a condition to wait out. What it responds to is informed, patient, evidence-based care from people who have taken the time to understand it.
Being Properly Understood
Sessions begin with the thing that most people arrive missing: a clinician who already knows what PPPD is, how it feels, and why the symptoms are doing what they’re doing. No pitching. No performance. Just a clear starting place.
Evidence-Based CBT for PPPD
CBT is the most studied psychological intervention for PPPD, and it’s the spine of our work together. We work with the catastrophic predictions, the body-checking habits, and the avoidance patterns that keep the nervous system on alert. We rebuild the habit of trusting your legs.
Nervous System Regulation
Talk therapy that ignores the body is only doing half the job. We integrate breathing work, grounding practice, interoceptive retraining, and, where it fits for you, nature-based regulation. The aim is a nervous system that can tolerate stillness, tolerate motion, and tolerate uncertainty about both.
Honest About Scope
Edna does not provide vestibular rehabilitation. That is physiotherapy delivered by trained vestibular physios. What she provides is psychotherapy that runs alongside your vestibular rehab, your GP care, and any medication your physician may recommend. If you don’t have a vestibular physio yet, we can talk through finding one in the GTA.
Collaborative, Not Siloed
PPPD care tends to go best when clinicians talk to each other. Edna is happy to coordinate with your vestibular physio, family doctor, ENT, or neurologist where that helps. You stay in the centre of the care plan.
Meeting You Where You Are
Some people come in within months of their first episode, still processing what happened. Others have lived with PPPD for years and have built an exhausting routine of quiet management. Both are valid starting points. Sessions are virtual across Ontario or in-person in Vaughan.
The Therapeutic Frame
An integrative, culturally sensitive approach, drawn from the modalities that have evidence behind them.
Our work draws primarily on CBT for the core loop, with elements of DBT for distress tolerance, Motivational Interviewing for the slow behavioural changes, Solution-Focused approaches for the week-to-week, and person-centred and strength-based framing throughout. Trauma-informed care is the baseline, not a module. The starting point is always your actual life and what feels workable from where you are.
“This is a condition Edna has put real time into understanding. Not a side specialty, not a page she wrote last week. She knows the mechanisms, the evidence base, and the lived weight of it, and she works with all three.”
Balens Psychotherapy / Clinical FocusNext Step
Ready to talk it through with someone who gets it?
Book a session with Edna. Virtual across Ontario, in-person in Vaughan. Direct billing available for many insurers.
PPPD Resources
Things worth reading between sessions.
A small, curated set of materials, clinical and practical. Save what helps, skip what doesn’t. You don’t need to read all of this to get started.
Educational Documents
Short, readable handouts on the core ideas, grounding practice, and CBT tools for PPPD.
What is PPPD?
A clear, accessible overview of the condition and how it presents day-to-day.
Download PDF
Grounding Techniques
Practical exercises for bringing the nervous system back when symptoms flare.
Download PDF
CBT for PPPD
How CBT targets the thought and attention patterns that maintain the loop.
Download PDF
Reframing Thoughts
A structured way to work with catastrophic predictions and body-checking habits.
Download PDF
Trusted External Resources
Reputable, clinically grounded sources for patients and families.
Balance & Dizziness Canada: PPPD Handout
A Canadian patient handout covering symptoms, causes, and treatment pathways.
Neurosymptoms.org: Functional Dizziness & PPPD
Jon Stone’s patient-facing resource on functional neurological symptoms, with a dedicated PPPD section.
PPPD Fact Sheet (Neurosymptoms.org)
A concise, printable fact sheet suitable for sharing with family or other clinicians.
VeDA: PPPD Patient Resource
Vestibular Disorders Association’s overview of PPPD, covering diagnosis and management.
Vestibular Disorders Association (VeDA)
The broader VeDA site, including directories for vestibular specialists and additional patient resources.
Peer-Reviewed Literature
For clinicians, students, or the deeply curious. Tucked away to keep the page scannable.
For the deeply curious 11 articles
A selected reading list of peer-reviewed work on PPPD, spanning diagnostic criteria, neuroimaging findings, predictors, and treatment reviews. All links open to PubMed.
- Staab JP. Persistent Postural-Perceptual Dizziness. Seminars in Neurology. 2020;40(1):130-137. PubMed
- Staab JP. Persistent Postural-Perceptual Dizziness: Review and Update on Key Mechanisms. Neurologic Clinics. 2023;41(4):647-664. PubMed
- Waterston J, Chen L, Mahony K, Gencarelli J, Stuart G. Persistent Postural-Perceptual Dizziness: Precipitating Conditions, Co-Morbidities and Treatment With Cognitive Behavioral Therapy. Frontiers in Neurology. 2021;12:795516. PubMed
- Sun L, Xiang K. A Review on the Alterations in the Brain of Persistent Postural-Perceptual Dizziness Patients and Non-Pharmacological Interventions for Its Management. Reviews in the Neurosciences. 2020;31(6):675-680. PubMed
- Trinidade A, Cabreira V, Goebel JA, et al. Predictors of Persistent Postural-Perceptual Dizziness (PPPD) and Similar Forms of Chronic Dizziness Precipitated by Peripheral Vestibular Disorders: A Systematic Review. Journal of Neurology, Neurosurgery, and Psychiatry. 2023;94(11):904-915. PubMed
- Indovina I, Passamonti L, Mucci V, et al. Brain Correlates of Persistent Postural-Perceptual Dizziness: A Review of Neuroimaging Studies. Journal of Clinical Medicine. 2021;10(18):4274. PubMed
- Kaski D. Introduction to the Assessment and Management of Persistent Postural-Perceptual Dizziness. The Journal of Laryngology and Otology. 2024;138(S2):S27-S31. PubMed
- Yagi C, Morita Y, Kitazawa M, et al. Subtypes of Persistent Postural-Perceptual Dizziness. Frontiers in Neurology. 2021;12:652366. PubMed
- Trinidade A, Goebel JA. Persistent Postural-Perceptual Dizziness, a Systematic Review of the Literature for the Balance Specialist. Otology & Neurotology. 2018;39(10):1291-1303. PubMed
- Das S, Annam CS, Bakshi SS, Seepana R. Persistent Positional Perceptual Dizziness in Clinical Practice: A Scoping Review. Neurological Sciences. 2023;44(1):129-135. PubMed
- Storm R, Krause J, Blüm SK, et al. Visual and Vestibular Motion Perception in Persistent Postural-Perceptual Dizziness (PPPD). Journal of Neurology. 2024;271(6):3227-3238. PubMed
Ready When You Are
Recovery starts with someone who already knows the terrain.
If you’ve been managing PPPD on your own, or bouncing between clinicians who didn’t quite get it, this is a place to stop and be properly heard. Book a session or reach out first, whatever feels right.